Jesy Nelson's raw documentary reveals twins' fight against rare SMA diagnosis

Jesy Nelson's raw documentary reveals twins' fight against rare SMA diagnosis

Mitchell Wilson
Mitchell Wilson
2 Min.
A baby lies in an incubator with an oxygen tube, surrounded by medical equipment and a white cloth, with a blurred, dreamy background.

Jesy Nelson's raw documentary reveals twins' fight against rare SMA diagnosis

Jesy Nelson has announced a new TV documentary focusing on her twins' battle with spinal muscular atrophy (SMA). The former Little Mix star revealed the news on Thursday while sharing updates on her children's health. Their diagnosis has led her to call for earlier testing of the condition in newborns.

Nelson's twins, Ocean Jade and Story Monroe, were diagnosed with SMA, a rare genetic disorder affecting muscle strength. Doctors warned they may not live beyond two years old. Despite this, the singer described her children as strong and resilient, hoping they might defy expectations.

The twins are currently undergoing treatment for SMA. Nelson decided to keep filming her documentary even after learning of their prognosis. She aims to use the platform to raise awareness and push for SMA to be included in the standard heel prick test given to newborns.

The documentary, set to air on Amazon Prime, will also cover Nelson's next steps. Her recent split from the twins' father, Zion Foster, has added to the challenges she faces. She believes the film could help bring about change in how SMA is detected and treated.

Nelson's documentary will highlight the urgency of early SMA testing and treatment. The programme is expected to provide an unfiltered look at her family's journey. No public campaign for newborn SMA screening has been confirmed beyond her personal advocacy.

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